Haemophilia
The Haemophilia Health Journey: Experiences and Unmet Care Needs of Caregivers and Their Young Children
ABSTRACT Introduction Understanding patients’ and caregivers’ experiences, values and needs is essential to implement patient‐centred care. However, specific insights into how young children with haemophilia and their caregivers experience the entire care trajectory, from diagnosis onwards, remain limited. Aim Gain an in‐depth understanding of the experiences and needs of caregivers of young children (0–10 years) with haemophilia regarding haemophilia care and daily life, as well as children's own perspectives. Met …