Pediatrics
Early Check: The First 5 Years
Evidence of net benefit and feasibility of implementation is necessary for a health condition to become part of routine newborn screening. But acquiring data to support informed decision-making is difficult without a nimble and coordinated research capacity grounded in public health practice, a problem exacerbated in the case of rare disorders. To address this concern, we built and implemented Early Check to test the feasibility of a research resource that could adapt to changing needs for data. During the first 5 …