The Essential Role of Psychosocial Care in Comprehensive Haemophilia Treatment: Global Perspectives From Haemophilia Treatment Centres and National Member Organizations

Vollständiger Abstract

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ABSTRACT Psychosocial care is a critical component of comprehensive haemophilia management, though its availability varies across regions and between clinical and community settings. This paper examines the landscape of psychosocial services offered through Haemophilia Treatment Centres (HTCs) and National Member Organizations (NMOs), both of which promote mental health, treatment adherence, and quality of life (QoL) using different frameworks. The delivery of psychosocial care in clinical settings, including staffing models, training, and collaboration with other healthcare professionals, is described in this paper, as are the differences between high‐income and low‐ and middle‐income countries. We explore how socioeconomic factors, gender, and cultural context influence haemophilia care and consider the future of psychosocial care needs related to novel therapies such as gene therapy and extended half‐life products. The paper concludes by advocating for integrated psychosocial care that adapts alongside biomedical advances, addresses global inequities, and emphasizes a patient‐centred, culturally informed approach to treatment.