Intervention to Improve Running and Physical Activity Participation in Children With Generalised Joint Hypermobility: A Feasibility Study

Vollständiger Abstract

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ABSTRACT Background Children with symptomatic paediatric generalised joint hypermobility (pgGJH) have limitations in physical activity and participation, yet there is a lack of research to guide intervention. In Australia, these children do not receive funding support. The objective of this study was to investigate the feasibility of a programme delivered in a private practice to improve running and associated goals of children with pgGJH from the perspectives of children, parents and staff. Methods Children with pgGJH undertook a weekly group running intervention and home exercise programme (HEP) for 10 weeks. Feasibility of delivery in a private paediatric therapy clinic was determined using physical and self‐reported measures for acceptability, demand, implementation, practicality, integration and intervention efficacy. Semi‐structured interviews with participants, therapists and managers explored multiple aspects of feasibility of the programme. Results Acceptability : satisfaction was rated between 6.5 and 9/10. Demand : 155 of 175 survey respondents were interested in the programme. Recruitment saw 24 participants invited, 10 excluded and 6 declined. Eight children aged 10–15 years (two female) participated and attended ≥ 90% of sessions. The HEP was completed at least twice per week by 62% of participants. Implementation : the intervention was completed according to the protocol with one minor adverse event. Practicality : the intervention was well equipped but expensive to run with a therapist to participant ratio of 1:3. Integration : interventionists perceived the programme to fit well within the practice infrastructure and culture. Efficacy : participants and parents reported improved running technique and increased confidence in physical activity. Leg stiffness improved and kinesiophobia was reduced. Conclusion A running intervention for children with pgGJH was acceptable, in demand, practical to deliver and able to be integrated and implemented in a private clinic. Cost was the main challenge identified by families and management.